Mom shocked by her baby after birth, her words now
1. A Rare Diagnosis
Brenna was born with Harlequin ichthyosis, a rare and serious skin condition that affects her appearance and daily life. Her parents, Courtney and Evan, quickly had to adapt, facing both medical needs and the social challenges that came with raising a child who looks different.
2. Facing Social Reactions
One of the hardest parts for Courtney is how others respond. Instead of asking questions or teaching kindness, many people simply look away. “Why not just say, ‘I don’t know, but we’re all unique’?” she wonders, frustrated by missed opportunities for understanding.
3. Love in the Everyday
Despite the challenges, Brenna is thriving. She’s joyful, confident, and surrounded by love. Her brother Connor is her biggest fan, and her dad Evan gently cares for her skin each day. Though she has little hair, “he tenderly combs what she has every morning,” showing quiet devotion in their daily routine.
4. A Message of Acceptance
Courtney shares their journey online and in her book A Different Beautiful (2016), using their story to promote empathy and inclusion. Their experience is a powerful reminder: true beauty lies in love, strength, and compassion—not appearances.
